Faking It 

Now that Lady Gaga has come out and announced to the world she has been diagnosed with Fibromyalgia, im seeing all these “wonder” cures popping up everywhere. Perhaps because of Gaga, the world is starting to pay more attention, but are they really? Or are they just jumping on the fibro bandwagon? 

Because of its relatively unknown-ness in the world, is it any wonder people are starting to see Fibromyalgia as a “fake disease”?  Because hey, Gaga can perform and even dance on a stage and travel the world, so surely it can’t be that bad, and we are all making it out to be worse than it is. Hypochondriacs.

I read an article on the daily mail (yes I know, I hate it too, but bear with me!) about a singer who has been cured of Fibromyalgia by using a miracle cream costing less that £10. *cue the mad rush to buy*. Now I’m not going to go in to this article in detail, because I literally have no energy or desire to talk about something that’s is absolutely ridiculous, but instead I wanted to talk about the comments that followed this article. 

I was angered to see a comment from an individual stating that “it’s a fake disease for hypochondriacs” (see image below!) Clearly I was not the only one perplexed, as there are many replies to this comment all very angry too!

But it also got me thinking.  This is exactly the type of comment people diagnosed with Fibromyalgia deal with on a daily basis. And that includes me.  It’s exactly how people with no knowledge of the condition react.  I mean your just lazy for staying in bed all day right? Your just a hypochondriac because you ache and can’t walk, I mean it’s not that bad surely? 

“Lazy, hypochondriac, attention/drug seeker, moaner” these are all “opinions” I deal with every day. These are the ways I’m judged, and how even some of those closest to me, view my health. 

But in a way I also feel quite envious of this individual, because, clearly, she has never had to deal with Fibromyalgia, maybe she’s never even had someone close to her diagnosed and watched them try and live their lives as best they can. And that’s fine, because let’s face it, I would NEVER wish Fibromyalgia on anyone, not even my worst enemy. 

But this is where awareness comes in.  And although in a way I think that Lady Gaga announcing her condition has been a great eye opener for the world, it is also giving people this mis-perception that “if Gaga can do it why can’t you”?

This is never going to be a problem solved over night, heck is taken this long to get people to ask what it is in the first place, but common sense, knowledge and a bit of empathy can go a long way.  Find out about the condition before you spout your mouth off.  Don’t just presume we are fakers, out for what we can get, because that couldn’t be farther from the truth.  Or better yet, keep your mouth shut.

As I was once told “if you’ve got nothing nice to say, say nothing at all”. 

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9 thoughts on “Faking It 

  1. That comment on the daily mail is just like the daily mail… It’s a pointless newspaper for pointless illiterates. Don’t take it to heart, they’d complain about Mother Teresa.
    I personally don’t think it’s helpful when celebs do things like that, I think it’s just PR…
    People always judge what they don’t know for whatever reason hun, as hard as it is try not to waste too much energy on them.
    You’ve just climbed a mountain despite this illness so be proud of yourself, do what you can when you can, you’re doing good xx

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  2. Interesting post, it’s horrible when people use illness to exploit others through “miracle cures” etc. There was also a clickbait article going round about “the mystery of fibromyalgia solved” recently. A load of crap as expected! I’m sorry that you experience that judgement from around you, it’s horrible enough having the the fibro without people making you feel worse. I worry about telling people for that exact reason. I get your point about people saying “if lady gaga can do it, then why can’t you?”, but I was happy that she has brought more awareness to the condition. And it made me think, she has fibro and she can still do lots of things… that gives me hope. I am very lucky and my fibro is currently pretty mild and I am still able to do most things, I just need to learn the art of moderation! Xx

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    1. Thank you for your lovely comment! I agree that she has raised the profile of Fibromyalgia and that can only be a benefit to us that suffer from it too, I just worry that the image she gives off as having a normal day to day life in front of the world has a negative affect on the “unbelievers”, but like us all we all put a front on for the world, it’s what goes on behind closed doors that people need to see. Xx

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  3. I relate to this 100%. If only they knew, and yet we know that if they did, they would be horrified, so we do not wish it. This road is lonely enough without all this stigma. Thank you for using your voice to fight it! Spoonie love x

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  4. Reblogged this on Chronically Fab Blog and commented:
    Lady Gaga has a team of people to help her as in massage therapists, private doctors, and the funds to pay for treatments the rest of us can’t afford. Props to her for coming out with her diagnosis and making the world more aware of Fibromyalgia, but she can get treatments we can’t. It all comes down to money. And it doesn’t grow on trees.

    Liked by 1 person

  5. Reblogged your post… with this comment “Lady Gaga has a team of people to help her as in massage therapists, private doctors, and the funds to pay for treatments the rest of us can’t afford. Props to her for coming out with her diagnosis and making the world more aware of Fibromyalgia, but she can get treatments we can’t. It all comes down to money. And it doesn’t grow on trees.” Thank you for putting it out there. Living with fibro is hard enough but we can’t get the team she can afford and the treatments or private doctors. I think that’s sad.

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  6. I watched the Gaga: Five Foot Two documentary on Netflix and I was struck by how much agony she looked like she was in. It was at times really hard to watch. And she has round the clock help, the best medical care money can buy and people to help ease her symptoms. I can’t imagine what it must be like to have to cope with something like this when even those around you are dismissive of it. People really need a wake up call, and I am so sorry people have been so rude to you. I think you’re bloody amazing and so strong and brave xxx
    Beth x Adventure & Anxiety

    Liked by 1 person

  7. I wish i was surprised at that daily mail comment! How shocking, people are incapable of empathy nowadays it seems
    Thank you for writing this! 😊 x

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